European benchmark in paediatric transplantation
TransplantChild, European Reference Network in Pediatric Transplantation, coordinated by the Hospital Universitario La Paz
The Hospital Universitario La Paz is in charge of coordinating the European Reference Network for Paediatric Transplantation
The Hospital Universitario La Paz coordinates TransplantChild, the European Reference Network in Paediatric Transplantation, thus leading the only European Reference Network coordinated by Spain.
The TransplantChild Network is coordinated by Dr. Paloma Jara and it is comprised of 18 hospitals in 11 countries: Germany, Belgium, France, Great Britain, Holland, Italy, Lithuania, Poland, Portugal and Sweden, as well as Spain.
This network works in the field of paediatric solid organ transplantation and hematopoietic stem cell transplants, by applying a cross-cutting patient-centric approach. It addresses the entire transplant process: pre-transplant, transplant, and post-transplant and focuses on issues that are critical to the child, such as dealing with a chronic condition and preventing secondary diseases associated to the transplant. It is staffed by highly-qualified multidisciplinary teams that are strongly committed to improving the quality of life of the patients and their families, as well as to research and the dissemination of knowledge.
Why is it excellent?
The Hospital Universitario La Paz is staffed by one of the most specialised multidisciplinary transplant teams in Europe, and it is the only accredited centre in Spain to perform all kinds of paediatric transplants (Transplantation Programme). Between January XNUMX and December XNUMX, a total of XNUMX solid organ transplants and hematopoietic stem cell transplants were performed, with survival and quality indicators comparable to the results obtained by the best hospitals worldwide
TransplantChild is a research and collaboration network that generates top-notch knowledge about transplant-related diseases, and conducts projects at European level aimed at identifying, validating, standardising and clinically applying bio-markers; or at transplant immunotherapy which, even if already performed on adults, still requires validation for infant patients.
In order to be included in the European Reference Networks (ERN) , which were created upon the mandate of the European Commission, the centre must be endorsed by the body responsible for its governance, meet excellence criteria in specific areas and have a qualified team of professionals in place.
Some figures
- 18 hospitals
- 11 European countries
- 6 types of transplants: kidney, liver, heart, intestine, lung, hematopoietic progenitors
- Multidisciplinary teams, clinical, surgical and care
- More than 600 transplants per year among all members
- Organization in 6 strategic areas: Improvement of care, harmonization of evidence based on best clinical practices, disseminate knowledge, research and innovation and patient empowerment.
- Support of common areas: Immunosuppression, rejection, tolerance, risk of infection and psychosocial well-being.
- Transversal view of the transplant: transplanted children change their primary disease to a chronic condition throughout their lives, marked by the need for treatment to avoid rejection.
- Mission: to improve life expectancy and quality of life for pediatric patients who require a transplant, by: ensuring access through the network to the best possible diagnostic advice, practices and support procedures, considering the cross-sectional point of view .
Leaders in hospital rankings
In addition to leading the TransplantChild Network, the Hospital Universitario La Paz is also involved in the European network 'RARE-LIVER'–a network devoted to rare hepatic diseases– and it is one of the Spanish centres with the greatest number of classifications as a National Reference Centre (CSUR).
In 2016 and for the third consecutive year, the Hospital Universitario La Paz of Madrid led the ranking of the most reputed public and private hospitals in Spain, according to a study by Monitor de Reputación Sanitaria (MRS - Health Reputation Monitor).
This study is based on nearly 3.200 surveys to healthcare professionals, patients and other professionals, and contains the objective analysis of over 900 clinical management and quality indicators. According to this analysis, La Paz ranks first in nine medical speciality areas (Cardiology, Dermatology, Endocrinology, Pneumology, Obstetrics and Gynaecology, Paediatrics and related areas, Rheumatology, Orthopaedic Surgery and Traumatology and Urology); second, in five specialities (Digestive Tract, General Surgery, Nephrology, Neurology and Ophthalmology); and third, in two areas (Medical Oncology and Psychiatry).
According to the first edition of the Hospital Excellence Index (IEH 2015), the Hospital La Paz is the second best rated public hospital in Spain. This index has been prepared by the Instituto Coordenadas de Gobernanza Realizada y Economía Aplicada (Performed Governance and Applied Economy Coordinates Institute) based on 1.500 surveys to healthcare professionals.
